More than two million people across the United States will receive notification that their personal and sensitive health information was stolen earlier this year during a cyberattack on Postmeds, the parent company of online pharmacy startup Truepill.
For some of those affected, this is the first they’ve heard of Postmeds, let alone that the company lost their sensitive personal and health information in the data breach.
News of the data breach also appeared to identify unknown healthcare startups that previously relied on Postmeds to fill their customers’ prescriptions.
Postmeds, or Truepill, is an online pharmacy fulfillment startup that fills prescriptions for branded telehealth services and other pharmacies and mails medications to their customers. Postmeds, through Truepill, has filled prescriptions for customers of Folx, Hims and GoodRx, and other popular online telehealth startups that have emerged in recent years.
Even if you’ve never heard of Postmeds, the company may have filled one of your prescriptions and handled your information. Truepill’s website says it has dispensed 20 million prescriptions to three million people since it was founded in 2016.
Postmeds recently told federal regulators in a legally required notice that 2.3 million people had their personal information stolen in the breach. The company began sending written notifications to affected individuals in early November.
Data breach ‘presents huge risk’
Inside data breach notificationPostmeds said the hackers stole a trove of sensitive data, including patient names and demographic information — such as dates of birth — the type of drugs prescribed and the name of the prescriber. In some cases, this information can infer the reason for taking the drug, which may include highly sensitive medical information about a person, such as details about their mental, sexual and reproductive health.
Some of those who received data breach notification letters told TechCrunch they were unfamiliar with Postmeds and why the company had their information.
“My partner and I also had overlapping periods where we were both Folx patients, but I never received a letter,” a former Folx customer whose partner received a data breach notification told TechCrunch.
Folx Health is a telehealth company serving the LGBTQIA+ community, with clinicians who can prescribe medications that support gender-affirming care. Folx said it previously used Truepill to fill customer prescriptions.
When reached by TechCrunch for comment, Folx COO Dana Clayton told TechCrunch: “Folx terminated its relationship with Truepill in November 2022. We are in contact with Truepill regarding the incident and are working to quickly assess any potential impact on our members. “
“Once I received my first package and saw ‘Truepill’ on the box from Folx, I realized, admittedly slowly on my part, that my data had been sent to an organization I personally had no trust with.” Former customer of Folx
“Like other healthcare companies, we send prescriptions to a wide range of pharmacies based on member choice, drug availability, cost and other factors. Folx takes the privacy of its members seriously and holds its partners to the highest security standards,” said Clayton. “The Truepill data breach has caused us great disappointment and concern, and Folx is committed to keeping our members informed as we learn more.”
Folx’s former client, who works in cybersecurity, told TechCrunch that the data breach “presents a huge risk, especially for a community that stands to lose a lot more with that data breach.”
Postmeds has not commented publicly beyond its data breach notification. TechCrunch asked Postmeds CEO Paul Greenall in an email to provide a list of companies Postmeds has worked with whose customers are affected. Grinal did not answer.
Another person who received a data breach notification letter said he was prescribed a continuous glucose monitor a year ago by startup Levels Health, which relies on Truepill to fill its customers’ prescriptions for blood glucose monitors.
When contacted by TechCrunch, Levels would not say whether its customers in the United States are affected by the Postmeds breach.
Kate Burton-Barlow, who represents Levels through a third-party agency, said in an email that Levels had “previously established a relationship with Truepill in the UK in anticipation of a future UK launch, but that launch has not taken place, therefore Levels does not have any customers in the UK that this could affect.’
TechCrunch reached out to several healthcare companies that relied on Truepill to distribute and ship medications.
When asked for comment by TechCrunch, Hims Khobi Brooklyn spokesperson did not dispute that customer data was affected by the breach involving Truepill. The spokesman did not say how many Hims customers were affected, but noted that not all Hims customers had their prescriptions paid by Truepill.
“Customer care and data security are top priorities at Hims & Hers, we’ve invested heavily in both and are proud of our track record. While this was not a breach of our systems or data, it is a reminder to remain vigilant about the steps we take to protect our customers,” Brooklyn said in a statement.
The startup Telehealth Cerebral, which provides telehealth services and prescription drugs for mental health conditions, told TechCrunch that it has not had a business relationship or shared patient information with Truepill since 2022. “To date, we have not seen any notices of a breach and they have no reason to believe that any brain patient [protected health information] has been impermissibly disclosed or accessed,” Cerebral spokeswoman Brittney Henderson said in an email. (Cerebral disclosed separately earlier this year that it had shared millions of patient data with advertisers over several years.)
Several other pharmacies that partnered with Truepill did not comment when contacted by TechCrunch ahead of publication.
CostPlus, the lowest-cost online pharmacy founded by Mark Cuban that relies on Truepill to ship drugs to customers, did not respond to requests for comment. Cuban invested an undisclosed amount in Truepill earlier in 2023.
The health coupon and prescription giant GoodRx relies on Truepill as a mail delivery partner. GoodRx spokeswoman Lauren Casparis did not respond to requests for comment.
Nutrisense, a tech startup that provides prescription continuous glucose monitors, is using Truepill to fulfill some orders, TechCrunch has learned. Nutrisense CEO Alex Skryl did not respond to an email seeking comment.
The HIPAA connection
It is not uncommon for technology or healthcare companies to share patient data with other companies, such as third parties or specialty pharmacies, to fulfill their services.
US health care providers, such as doctors’ offices and pharmacies, and insurance companies are subject to the privacy and health security rules set forth in the Health Insurance Portability and Accountability Act, or HIPAA, which in part governs how providers healthcare must properly manage patient data security and confidentiality. Falling HIPAA wrong can result in hefty fines.
However, many telehealth startups are not considered “covered entities” under HIPAA, and HIPAA often does not apply because the startups themselves do not provide care, but connect patients with healthcare providers.
As Consumer Reports notesHIPAA “sets out privacy rules that health care providers and insurance companies must follow when handling personally identifiable medical data,” but the same information that is protected in a doctor’s office “may be completely unchecked in other settings.”
Both Hims and Cerebral note in their privacy policies that while state privacy laws may apply, HIPAA “does not necessarily apply to an entity or person simply because health information is involved.” Companies that say they are “HIPAA Compliant” may mean that HIPAA does not apply to them.
The US has no national data security or privacy laws and instead relies on a patchwork of state laws that vary from state to state. Most Americans live in states that have little or no protection against the sharing of an individual’s information.
Instead, companies typically specify how they handle customer or patient data in their privacy policy, but are not required to disclose which specific companies they work with.
The two people who received data breach notification letters from Postmeds and spoke to us for this story criticized the companies that issued their prescriptions for a lack of transparency about who their business partners are and which of those partners would receive their sensitive personal information.
“Once I received my first package and saw ‘Truepill’ on the box from Folx, I realized, admittedly belatedly on my part, that my data had been sent to an organization I personally had no trust with.” former Folx user told TechCrunch.
Several threads on Reddit have comments from people who received data breach notifications from Postmeds but are unsure which company provided Postmeds with their information.
“I just got this letter and I have no idea which doctor it’s going through,” one person said. “He also received this letter. No knowledge of the company,” said another.
The breach is the latest to hit embattled Truepill.
Truepill underwent several rounds of redundancies in 2022, including large parts of its product team and all of its UK employees. In September, it was Truepill co-founder Sid Viswanathan pushed back by the company.
Earlier this month, Truepill settled with the US Drug Enforcement Administration alleging that illegally distributed thousands of prescriptions for controlled substancesin which Truepill “accepted responsibility for operating an unregistered online pharmacy”.
Do you work at a healthcare organization affected by the Postmeds/Truepill breach? Zack Whittaker can be reached on Signal and WhatsApp at +1 646-755-8849 or via email. you can also contact Carly Page securely on Signal on +441536 853968 or by email. You can also contact TechCrunch via SecureDrop.